MS Biomarker Team, finalist 2017 Eureka Prize for Innovation in Medical Research
What kind of MS medical team do you have?
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I’ve been noting a few comments lately about visits to our medical teams. Some of you are looking at changing doctors and some are happy with your current situations. I’ve also been reading comments about primary care providers (PCP). Therefore, I thought we might start the week off with that topic.
I see my MS specializing neurologist about every six months to a year and his nurse practitioner (again, an MS specialist) about every three months. I see my diagnosing neurologist about once every 24 months (I use him for any paperwork I might need to have written, as my MS guy is some kind of busy. These bi-annual check-ups make that possible). I’m searching for a new PCP, so I haven’t seen one of them in far too long.
I’ve got other medical professionals on my team, but most of them don’t do much for my MS.
I only have to travel about 30 minutes (only 7 miles but it’s diagonally across Seattle from my house. 60 minutes in traffic) and it’s about an hour’s drive to my regular neurologist.
I can get into the nurse practitioner with a couple of days notice but my multiple sclerosis doctor is booked pretty solid six months out. Not that any of my symptoms since diagnosis have ever been so acute that I couldn’t wait a day or two.
We have an arrangement that if I need a steroid treatment (number one, they know it must be REALLY bad if I’m calling for that) that I can just call in and they’ll set up the infusion that day and I just get in to see her at her first open appointment.
That’s my story; what’s yours?
How often do you see your MS medical team? Do you have contingency plans for if they can’t see you and you need to be seen? Do you get the kind of treatment when you are seen?
Let’s hear about your experience in the medical world of MS.
Wishing you and your family the best of health.
Video: Medical Self-Advocacy: Getting More From Your Healthcare Team - National MS Society
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